12/09/10

We heard from LDS hospital today. Our plans have changed...I know weird huh?...didn't expect it. Welcome to my life. Glad over the last few days I had been thinking about not ever making another plan again, because it will just get ruined. I promise I'm not being dramatic.

K...I'm gonna float this out to cyberspace...or common-sense space. I'm by no means an expert in leukemia or in cancer. I will preface with that first. BUT, I'm just shoot'n out an idea here. If one has leukemia, and has received chemotherapy (an induction no less). One would know/think that blood cells are not being made. I mean that is what the chemotherapy did. It killed the bone marrow. And the ability to make blood cells for a bit. SO if you give said person a lumbar puncture, ya know with a needle going into the thecal space and then you took out some fluid and replaced it with chemotherapy, they probably...probably will not heal like someone who doesn't have cancer. You following me? So really, do we need a separate order for a blood patch to be performed. Shouldn't this be common sense? I mean can we just TRY to avoid needless pain and suffering. GRRRRRR!!!! Hoping and praying that tomorrow's intrathecal chemotherapy will go well, and a blood patch will be an answer to his horrible headaches.

Jeremie's numbers are still at around 200 neutrophils. Still very neutropenic. And all of my children have colds. I love my life. Me and antibacterial wipes are good friends. Thank goodness for an upstairs! With separate ventilation, bathroom and T.V. :-) Small blessings.

Alright have that off my chest. Today we received an updated plan (doesn't that sound so P.C.? I know I'm proud of me too). Jeremie is going to Salt Lake on 12/15 Wednesday. He is going to be undergoing a ton of tests, a bilateral bone marrow biopsy (#8 & 9), then being "fitted" for his TBI (total body irradiation). Thursday he has more tests, and will finish the day with his last intrathecal chemotherapy. Then he will go back to LDS hospital on 12/30/10 for a couple of other tests. Admitted on 1/3/2011 to start the process for transplant. With a tentative date of transplant for 01/11/11. So we are going to be home for Christmas.

Still taking it all in. Anxious to get the show on the road, yet scared out of my mind. You know it would just be helpful if he wasn't hurting. Again, this week I realize how much Jeremie does. Poor Alex is getting a fast and hard lesson on taking care of the ins and outs of everyday adult life. Thank goodness for him. Even though every other day I want to shoot the kid. But oh well, I guess under the circumstances he is doing awesome.

Well...until something else decides to change...ta ta for now :-)