I'm so pooped. Just walking upstairs to update the blog is a chore lately. Man I miss my Jeremie! He is a great help to me. I left Alex in Salt Lake last weekend to hang with his dad and hopefully help out my parents a bit. That is like cutting off my left arm! Seriously, I miss that kid! He is such a help. He is my errand runner, my car fixer and kid picker-up-er. So shout out to you Alex...you rock and your mother misses you!
On Monday Jeremie started growing his very own platelets..WOO HOO!!! That is incredible news! Yee Haw! He continues on the right track. He is being decreased on his pain patch by 50 mcg every 3 days, and is eating better and better (without medication). It is like my husband has been awakened. Not sure if that is a good thing some days ;-) Ha Ha Ha.
He is still incredibly weak. I mean Hello! He just went through a major life changing procedure and brought him to the brink of death...feeling weak and tired makes a lot of sense. On average it takes a bone-marrow transplant patient 2 years to get back to full-time work. This is a big deal on the body. And I think one I'm going to have to keep reminding him of. I'm also scared he is going to be realizing this on his own. It is one thing to hear that cancer changes your life, but another to experience how profound that change is on your physical body and your psyche. He will never quite be the person he was. I keep telling him I hope he isn't! I didn't appreciate leukemia! This is a great change!
We have had a couple of challenges the week he was released. It was a chaotic start, and not on our end! Which was quite frustrating. I was kind of hoping that LDS hospital would be the bomb outpatient, and was very disappointed they were not...grrrr! So in the middle of that mess I talked to our oncologist here in St. George who was updated with Jeremie's case the week before he was discharged. With that information and what information I gave him he said he would be very happy to take care of Jeremie now in St. George. I was so ecstatic! But was quickly disappointed when I called LDS to start this transition of care. They didn't want him to go home yet. They thought it was too soon. I explained my problems about the chaotic week we had, and they promised to change that and apologized for the mess. So Jeremie was in Salt Lake for another week.
It is hard, I know we have a great routine at home. I feel so comfortable with him in St. George, and what his care will entail. Although Mom, you rock you have done amazing! I'm just pooped and want him home. 8 weekends in a row in Salt Lake is starting to take a toll on my house! Plus I feel we have a good sense of what this disease entails. We have lived it for 9 months. And I'm frustrated that they would send us home to die, but they won't send him home to live. There is a lot more, but I'm tired of thinking about it, to be honest. Right now it is up to Jeremie on how hard he wants to push this. Ultimately he is responsible for his care and how he wants to live out his life. No one can offer us guarantees. We have to sort out all of the choices and make the best decisions for our family.
Well my sweet darling continues to improve, doing well each day. My momma is helping us out in Salt Lake and is taking great care of him. I really appreciate all everyone in my life has done for us. I stand amazed at the people I get to call friends and family. Thank you so much!
Love to all!
Cori
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