11-29-10

Jeremie is still in DRMC. I'm a bit grouchy. I realize it is a bit of PTSD...so I'm gonna try and chill. Jeremie will be released from DRMC when his neutrophil count is above 500. And he will get to come home. Yesterday he had a CBC w/differential (that means it measures all the componets of his blood, like red blood cells, platelets and then it differentiates between the different types and amounts of white blood cells). His absolute neutrophil count (or ANC) is 0.2 or 200 neutrophils. That was YESTERDAY!!!!
Today they said they were at 200. Well that is funny, cause they DIDN'T PULL IT!!!! They only obtained a CBC WITHOUT a DIFFERENTIAL!!!

Quick rant...I am part of the medical profession. I take this very seriously. I NEVER say I do or did something and pass it off as true. IT IS A LIE if you didn't do it. I have heard lies like this before. When they told me Jeremie's blood tests all came back normal for 8 straight days, UNTIL I CHECKED THEM AND THEY WERE NEVER NORMAL!!! This is when I lost all trust and total belief in Doc and nurses. They stood by and didn't do their job. They let my husband suffer in pain, didn't consult with a hematologist, and LIED that they went over the labs, and said they WERE NORMAL.  Jeremie was dying from leukemia and they said he was NORMAL.

I promised I would never make the mistake of not asking exactly what the numbers were. I would never make the mistake of just sitting back and passively letting them take the lead. I don't have a full trust anymore. So I have a HUGE problem with people telling me things that aren't true, or don't make sense. I feel that they are hiding information. This increases the mistrust...DON'T DO IT!

I bring it up with the nurse today that a CBC was pulled but not with the diff. She looks at me a bit panicked. I explained that his being able to come home is contingent upon knowing what his neutrophil count is. So it needs to be ran. She kind of leaves and says ok...we will send for it. I'M EXHAUSTED at this junk. It drives me nuts! Really? Really? Does this need to be this difficult??!!!

Whew...I'm breathing, breathing...feeling better