GRRRR...

Sweet Jeremie had to go to have his lumbar puncture today and they decided to do an MRI to rule out a "cause" to his headache.

They were late taking him down to have the lumbar puncture, then he went immediately to MRI. It was several hours before he was back to the room. He said it went pretty well. Called the nurse to get some pain medication for his headache. He was able to enjoy a couple of minutes in silence.

Around 4:00 one of our Oncologist and a P.A. (not my favorite one...blah!) came in the room...followed by my brother-in-law. They promptly announced that the MRI was back and that it showed a sub-arachnoid bleed. And he was immediately being sent down to CT. As MRI wasn't the greatest tool to see bleeds with. They said it was possibly an aneurysm or a blood vessel problem caused by the leukemia. I was scared out of my mind. They said they would be consulting with Neurology immediately and would have the neurologist and the neurosurgeon come talk to us.

Jeremie went down to CT...mind you he had just returned from having a lumbar puncture (needs to stay flat for a minimum of 2 hours to prevent spinal headache), then an MRI, now was being wheeled down for CT. He wasn't in the happiest of moods. While he was gone the oncologist let us know that he spoke with the neurosurgeon who said he was "underwhelmed" by what he saw on the MRI, but that the CT will say what is going on.

Jeremie came back from CT. They ordered platelets as his had fallen to 99,000 (not to bad...not bad enough to get platelets). They wanted to prevent a bleeding problem from having low platelets. So whatever...they ordered platelets. It isn't like it was gonna hurt him. We saw the neurologist who did her assessment. Jeremie's only symptom of a problem is an unrelenting headache.

Doc's ok Chemo to be hung...which was supposed to be started at 1:00 p.m. today. Didn't get started until after 5:00 p.m. But oh well, it isn't looking like we are going anywhere tomorrow :-(

Oncologist practically skips in the room! It is AIR! The CT came back with AIR! Which is totally abnormal, but isn't blood! No broken blood vessel or aneurysm! WOO HOO!!!! They think maybe the air came from the lumbar puncture on Monday!!! And the good news keeps coming. The lumbar puncture came back with ZERO leukemia cells! *\o/*...doing a dance...oh yeah! Aaaaahhhhhhh I can breathe. I think I just aged by 20 years. I'M gonna be the one admitted for a stroke soon!

It was nice to have Robin here for the whole roller coaster ride :-) I don't think he thought so, but it was nice to share the scary up and down mess of our lives right now! Or maybe I was just happy I wasn't alone this time.