Jeremie is having another lumbar puncture today. The last one performed on Monday came back with "rare suspicious looking cells". Most likely leukemia. So this means that he will be getting twice weekly lumbar punctures with chemotherapy. YUCKY! The chemotherapy placed intrathecally (in the thecal space in the spinal column) did do its job. He went from having 9 cells in the "field of vision" or what they saw under the microscope. To one cell in the field of vision. So progress or "headway" as they say it is being made.
He has a "hint" of a rash...last time this was a major side-effect and was quite miserable. We are hoping it doesn't get worse. Unfortunately, he is pretty sick. Nausea/Vomiting last night, along with a pretty massive headache. Part of the chemotherapy regimen this time involves pre-medication with steroids and Tylenol. To head off some of the side-effects. Yet the awesome steroids make him pretty miserable. And seriously amp'd up!
Spoke with the radiation oncologist last night. It was quite informative. A little daunting, and scary. But appreciative that he took the time to explain exactly what to expect and how it will work. I don't think it helped the headache part of last night.
Our insurance approved the testing of cord blood. So a sample of the cord blood is being sent to LDS hospital for additional testing to insure it is a match for Jeremie. He had to have an echo, EKG and a pulmonary function test to make sure he was healthy enough to have a transplant. He is all clear.
We are looking at around 4 weeks to transplant. Looks like we will be in Salt Lake for Christmas. Not very happy about this. We were looking forward to having Christmas at our house this year :-( But oh well, rather have a healthy honey then be at home.
Hopefully we get to come home on Friday :-) He should be able to do the twice weekly lumbar punctures in St. George. He will do this until transplant.
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